ELF Patient organisation programme

The European Lung Foundation (ELF) brings together patients and the public with respiratory professionals to positively influence lung health. ELF works all year round with a network of national and European patient organisations who take part in the ERS International Congress.

The aim of having patient organisations at Congress is to:

  • Present the patient perspective in scientific and educational sessions
  • Promote the role of patient organisations
  • Strengthen the European community of respiratory patient organisations
  • Encourage professionals to engage with patient organisations
  • Promote the wider participation of patients and patient organisations in healthcare worldwide

Patient organisations from across Europe will be located in the World Village and involved in activities taking place at Congress. Meet and find out more about these organisations at the ELF and patient organisation stand and at their hot desks.

The World Village exhibition will be open from:

Sunday 29 September to Tuesday 01 October from 09:00 – 17:00, and on Wednesday 02 October from 09:00 – 12:00, with an ELF staff member and patient organisation representatives on the ELF and patient organisation stand at all times.

ELF has put together a varied programme of open and invitation-only events, as well as ensuring patient participation throughout the Congress. See below for details.

ELF Patient Organisation Networking Day (open to all patient organisations, registration required)

ELF will hold its annual patient organisation networking day in collaboration with the ERS International Congress. The theme for this year is 'Patient Organisations 2030!' with speakers, posters and discussions aiming to help realise the actions required to reach our vision for patient organisations of the future. The day will provide patient organisations with the opportunity to learn and share their expertise and ideas, and build new collaborations.

The event will be held on Saturday, 28 September, 11:30 – 17:30, at IFEMA congress centre in Madrid and is for members of the ELF patient organisation network and is free to attend. Registration is required.

If you would like more information or are a patient organisation representative who would like to attend, please contact Jeanette Boyd.

Download the provisional ELF Patient Organisation Networking Day 2019 programme